Genomic Data Sharing: A Comprehensive Guide to Precision Medicine

Authored by Jennifer B. Mccormick and Jyotishman Pathak, Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine is a cutting-edge publication that delves into the intricacies of genomic data sharing, a crucial aspect of precision medicine.

Expert Insights and Real-World Case Studies

This book brings together international leaders in genomic data to share their expertise and experiences, presenting practical case studies that highlight key successes, challenges, and opportunities in genomic data sharing. The book covers in-depth examinations of prominent initiatives, including:

• eMERGE Network
• Undiagnosed Disease Network
• Vanderbilt Biobank
• Marshfield Clinic Biobank
• Minnesota Authorization
• Rochester Epidemiology Project
• NIH-sponsored biobanks
• GINA (Genetic Information Nondiscrimination Act)
• Global Alliance for Genomics and Health (GA4GH)

Overcoming Ethical, Legal, and Social Challenges

In addition to showcasing real-world examples, the book provides concise overviews of the ethical, legal, social, and IT challenges that clinicians, policymakers, and regulators face in the realm of genomic data sharing. This comprehensive guide equips readers with valuable insights to navigate the increasingly complex ethical, social, and clinical landscape of precision medicine.

Key beneficiaries of this book include clinician investigators, clinicians affiliated with academic medical centers, policymakers, and regulators seeking to advance their understanding of genomic data sharing and its applications in precision medicine.

Book Details:

Published by Academic Press on December 16, 2022

Language: English

Pages: 230

ISBN-10: 0128198036

ISBN-13: 978-0128198032

This authoritative publication serves as a valuable resource for those working to harness the power of genomic data sharing to transform healthcare and improve patient outcomes.