Comprehensive Lifetime Care of Adult Congenital Heart Disease

Adults with congenital heart disease (ACHD) are a rapidly growing, frequently underserved population who present new challenges in cardiology patient management. In Cleveland Clinic Comprehensive Lifetime Care of Adult Congenital Heart Disease, an online video CME course, presenters address the latest clinical and research advances in congenital anomaly morphologies. Evidence-based lectures focus on the best diagnostic modalities and interventions, as well as the most appropriate management strategies.

Learning Objectives

At the conclusion of this activity, the participant will be able to:

1. Summarize the most recent developments in the assessment of right ventricular outflow tract reconstruction, including clinical evaluation and interventional, surgical, and hybrid options in adult patients with congenital heart disease.
2. Describe improvements in strategies in the assessment and management of adults who underwent Fontan surgery, including imaging, treatment options, and timing of valve interventions, Fontan conversion, and heart failure therapies.
3. Summarize options for the assessment and treatment of patients with Fontan-associated liver disease.
4. Describe the social and patient-perceived barriers that complicate the diagnosis and life-long management of adult congenital heart disease patients.
5. Detail the highly complex ecosystem of congenital heart care in adults, and describe how new guidelines may shape that care in the future.

Topics / Speakers

ACHD General

1. ACHA Accreditation & Using ACHA as a Platform for Patient Connections – Mark Roeder
2. ACHD Guidelines – Karen Stout, MD
3. Patient Experience Video and Panel – Moderators – David Highfill, LCSW and Amy Basken, MSP
4. Patients: Robin Davis, Jane McMaster Thornton, and Terese Quarino
5. Panel Discussion and Q&A – Moderators – David Highfill, LCSW and Joanna Ghobrial, MD, MS
6. Panel: Mark Roeder, Karen Stout, MD, and Tara Karamlou, MD, MSc

The Pulmonary Valve (TOF and Other Lesions)

Ventricular Arrhythmia Risk Prediction in Repaired Tetralogy of Fallot Using Personalized Computational Cardiac Models – Natalia Trayanova, PhD

Tetralogy of Fallot RV Remodeling and Timing of PVR – Tara Karamlou, MD, MSc

Tetralogy of Fallot Managing More Than 4 Arrhythmias – Akash Patel, MD

Transcatheter Pulmonary Valve Interventions – Joanna Ghobrial, MD, MS

Keynote Presentation

Adult Congenital Heart Disease Past, Present, and Future – Vaughn Starnes, MD

Fireside Chat – Vaughn Starnes, MD, and Lars Svensson, MD, PhD

Single Ventricle Specifically

Fontan Outpatient Evaluation and Medical Therapy – Sanjeeb (Sean) Bhattacharya, MD

Surgery After Fontan Procedure – Edward John Hickey, MD

Imaging Echo, CT MR and 3D Printing for Fontan Imaging – Justin Tretter, MD

EP Arrhythmias in the Fontan Patient – Jeremy Moore, MD

Fontan-Associated Liver Disease (FALD) Evaluation for the Failing Fontan Liver, When to Transplant the Liver, When to Do En-Block Heart and Liver Transplantation – Koji Hashimoto, MD, PhD

Timing of Advanced Heart Failure Therapy? Do We Wait Too Long? – Edward Soltesz, MD, MPH

Nurse-NP Perspective Fontan Patient Follow Up-Long Term Care – Nicole Rush, NP

Panel Discussion and Q&A – Panel: Sanjeeb (Sean) Bhattacharya, MD, Edward John Hickey, MD, Justin Tretter, MD, Jeremy Moore, MD, Koji Hashimoto, MD, PhD, Edward Soltesz, MD, MPH, Nicole Rush, NP, Tara Karamlou, MD, MSc, and Natalia Trayanova, PhD

RV and LV Failure: Medical and Surgical Solution

Pulmonary Hypertension Medical Therapy for Systemic RVs Is There Any Data? – Miriam Jacob, MD

Evaluation of the Systemic RV and Systemic AV Valve – Rukmini Komarlu, MD

ACHD ICD or No ICD – Mohamed Kanj, MD

VAD in the Systemic Right Ventricle Surgical Pearls – Edward Soltesz, MD, MPH

ccTGA Physiologic Repair vs Anatomic Repair

Is Adulthood Too Late for Anatomic Repair? – Tara Karamlou, MD, MSc

Surgical Strategies for Challenging Small Aortic Root or Redo Aortic Root – Hani Najm, MD, MSc

Problems in ACHD: Innovations in Clinical Care and Research

Genetic Testing in Adult Congenital Heart Disease – Joseph Liu, MS, LGC

Bicuspid Aortic Valves and Aortopathy New Approaches

Case Presentation Beka Bakhtadze, MD

Imaging Justin Tretter, MD

Intervention – Joanna Ghobrial, MD, MS

Surgical (Reimplantation in Bicuspid Valves) – Tara Karamlou, MD, MSc

Ebsteins and Challenging – Atrioventricular Valves

Case Presentation Nandini Mehra, MD

Imaging Margaret Fuchs, MD

Surgical Vaughn Starnes, MD

Interventional Approaches – Joanna Ghobrial, MD, MS

Ozaki and Ross

When and for Whom

and Does it Last

Case Presentation William Frankel, MD

The Ross Procedure Ismail El-Hamamsy, MD, PhD

AAOCA in Adults Comprehensive Approach to Evaluation and Treatment

Case Presentation Thomas M. Das, MD

Imaging Joanna Ghobrial, MD, MS

Surgical Hani Najm, MD, MSc

CCF Outcomes – Tara Karamlou, MD, MSc

Panel Discussion and Q&A – Panel: Ismail El-Hamamsy, MD, PhD, Hani Najm, MD, MSc, and Tara Karamlou, MD, MSc

Special Topics in the Arc of Care for ACHD

ACHD Groundbreaking Research Trials and Studies – Animesh (Aashoo) Tandon, MD and Amber Khanna, MD

Adult Congenital Heart Disease and Socioeconomic Disparities – Keila Lopez, MD, MPH

Reproductive Considerations for ACHD Patients in 2023 Implications in a Restrictive Climate – Justin Lappen, MD

Congenital Heart Disease and Sports – Michael Emery, MD

Date of Original Release: June 1, 2023