A Mother’s Heart-Wrenching Experience: 16 Days in the Battle Against HLH

By Maire Kyriacou, Author

It’s a humbling realization to acknowledge that everything I’ve taken for granted over the last 13 years has been turned upside down. The simple joys of touching, holding, and being beside my daughter, Lils, now require permission from others. The unspoken right to care for my own child has been entrusted to other mothers’ hands.

The most basic of motherly duties, which were once second nature to me, now need to be requested and approved. The thought of asking permission to perform tasks that are instinctual to a mother’s love is a harsh reality I’m forced to confront. My. Own. Child.

This poignant account chronicles the 16-day journey of a mother’s unwavering dedication as her teenage daughter battles a life-threatening condition, Hemophagocytic Lymphohistiocytosis (HLH).

Book Details:

• Publisher: Austin Macauley Publishers
• Publication Date: December 16, 2022
• Language: English
• ISBN: 9781398478794

This heart-wrenching story of love, resilience, and hope will resonate with anyone who has faced the challenges of caring for a loved one in crisis.